I live in Kent, and have been making cards for about 8 years. I have 2 gorgeous grandsons, Louis who is 9 and Fray is 4. My grandson Louis was diagnosed at 6 years old with having "DUCHENNE MUSCULAR DYSTROPHY". This came as a complete shock to our whole family as we'd never heard about this form of muscle disease, nor is there any previous family history of this condition. The past year has been very painful for all of us, as we've had to learn a lot about Louis' condition and how he will be affected in the future.
There are a number of different types of muscular dystrophy, DUCHENNE being the most severe form. All of which are caused by faults in the genes which cause a cruel, progressive muscle weakness due to muscle cells breaking down which in time are gradually lost. This is a very rare and serious condition, which affects around 100 baby boys per year in the U.K. By the age of 8 to 11 years all boys are unable to walk, and confined to a wheelchair, and for all boys, this conditions is so serious, it is 100% fatal.
If you would like to donate to our charity to help in the finding of a cure for Louis, and all the other boys suffering, then please contact me.
8 comments:
wow what a greaet little mover eh ... may see him on britains got talent real soon ... happy crafting and love sandy xx
He's sure got rythmn :o)
brilliant little dancer
katex
Oh how wonderful is that, a great little mover :o)
Jackie xx
Wow, what a mover. He looks so cute in his little suit too. Sue.x
Awww he is so cute, nice moves too :) Viv xx
For a little four year old he certainly knows how to move to the rhythm...Bless him! he looks really smart, too xx
Move over John Travolta..fray's in town!
Linda xx
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