We spent a very long day yesterday at Great Ormond Street Hospital with Louis. He has now been selected to go on the 5 year DMD Heart Protection Trial. He endured 7 hours of tests including ECG, Cardio, blood tests. lung capacity tests, numerous scans, physical tests, motor skills, he was prodded and poked all over and never complained once. He even had to sign his own consent form to take part. He is such a brave little boy and we are so proud of him.
If anybody can spare £1 you can text DUCH22£1 and send to 70070 to donate to duchennenow . Every £ donated goes to help find a cure or even a treatment for this terrible disease. Thankyou so much. xx