Thought i would share a picture of Louis' new splints. These are what he has to wear to bed every night, he hates them.They are quite heavy and they make it hard for him to get comfortable. He asked his mum the other night, "How long have i got to wear these for" Bless his heart. They are to keep his feet and ankles in the correct position, to stop him getting contractures. xx
I live in Kent, and have been making cards for about 8 years. I have 2 gorgeous grandsons, Louis who is 9 and Fray is 4. My grandson Louis was diagnosed at 6 years old with having "DUCHENNE MUSCULAR DYSTROPHY". This came as a complete shock to our whole family as we'd never heard about this form of muscle disease, nor is there any previous family history of this condition. The past year has been very painful for all of us, as we've had to learn a lot about Louis' condition and how he will be affected in the future.
There are a number of different types of muscular dystrophy, DUCHENNE being the most severe form. All of which are caused by faults in the genes which cause a cruel, progressive muscle weakness due to muscle cells breaking down which in time are gradually lost. This is a very rare and serious condition, which affects around 100 baby boys per year in the U.K. By the age of 8 to 11 years all boys are unable to walk, and confined to a wheelchair, and for all boys, this conditions is so serious, it is 100% fatal.
If you would like to donate to our charity to help in the finding of a cure for Louis, and all the other boys suffering, then please contact me.