We spent a very long day yesterday at Great Ormond Street Hospital with Louis. He has now been selected to go on the 5 year DMD Heart Protection Trial. He endured 7 hours of tests including ECG, Cardio, blood tests. lung capacity tests, numerous scans, physical tests, motor skills, he was prodded and poked all over and never complained once. He even had to sign his own consent form to take part. He is such a brave little boy and we are so proud of him.
If anybody can spare £1 you can text DUCH22£1 and send to 70070 to donate to duchennenow . Every £ donated goes to help find a cure or even a treatment for this terrible disease. Thankyou so much. xx
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5 comments:
What a handsome little man and so brave. You didn't put the number to text to Sharon. I will pop back later to see if it's here...hugs
Jackie xx
Thankyou Jackie, the number is there, lol. it's 70070. xx
Hi Sharon, thanks for giving the details for donating. Louis is so brave and so gorgeous! Sending hugs xx
Thank you for the number Sharon, I can donate now :o)
Jackie xx
Blimey what have we got to moan about,he is so brave and a wonderful little boy,you must all be so proud of him.Always thinking of you.Huggles xxx
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