But i thought i would share with you a recent photo of my very brave Grandson Louis. This was taken recently at my nieces wedding where he was a page boy.
I live in Kent, and have been making cards for about 8 years. I have 2 gorgeous grandsons, Louis who is 9 and Fray is 4. My grandson Louis was diagnosed at 6 years old with having "DUCHENNE MUSCULAR DYSTROPHY". This came as a complete shock to our whole family as we'd never heard about this form of muscle disease, nor is there any previous family history of this condition. The past year has been very painful for all of us, as we've had to learn a lot about Louis' condition and how he will be affected in the future.
There are a number of different types of muscular dystrophy, DUCHENNE being the most severe form. All of which are caused by faults in the genes which cause a cruel, progressive muscle weakness due to muscle cells breaking down which in time are gradually lost. This is a very rare and serious condition, which affects around 100 baby boys per year in the U.K. By the age of 8 to 11 years all boys are unable to walk, and confined to a wheelchair, and for all boys, this conditions is so serious, it is 100% fatal.
If you would like to donate to our charity to help in the finding of a cure for Louis, and all the other boys suffering, then please contact me.
10 comments:
Awe! Bless him...he's gorgeous!!
wow super photo of your lovely grandson .. he certainly is a lovely little fellow happy crafting and love sandy xx
Beautiful photograph, what gorgeous eyes he has :o)
Jackie xx
Adorable!
What a handsome little boy he is!
xx
He really is a gorgeous little boy,you all must be so proud of him and his brother too.Big Huggles.xxx
What a handsome lad, he's absolutely adorable!!!
xx
This is a beautiful picture Shaz :) No wonder you are all so proud, he looks so loveable :)
Wishing you and all your family all the best for 2012 hun.
hugs
xxalisonxx
Always has been gorgeous, always will
xxxx
What a lovely grandson, you must be so proud :O) Viv xx
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