No card today, but Louis my lovely grandson who has DMD wanted me to show you his new splints. He has to wear these to bed everynight and he never complains. They are animal print and he thinks they are very trendy, lol.
I live in Kent, and have been making cards for about 8 years. I have 2 gorgeous grandsons, Louis who is 9 and Fray is 4. My grandson Louis was diagnosed at 6 years old with having "DUCHENNE MUSCULAR DYSTROPHY". This came as a complete shock to our whole family as we'd never heard about this form of muscle disease, nor is there any previous family history of this condition. The past year has been very painful for all of us, as we've had to learn a lot about Louis' condition and how he will be affected in the future.
There are a number of different types of muscular dystrophy, DUCHENNE being the most severe form. All of which are caused by faults in the genes which cause a cruel, progressive muscle weakness due to muscle cells breaking down which in time are gradually lost. This is a very rare and serious condition, which affects around 100 baby boys per year in the U.K. By the age of 8 to 11 years all boys are unable to walk, and confined to a wheelchair, and for all boys, this conditions is so serious, it is 100% fatal.
If you would like to donate to our charity to help in the finding of a cure for Louis, and all the other boys suffering, then please contact me.
12 comments:
louis.. they are so cool, you trendy boy!!
Theses are sooooo cool :O) Chris x
GRRRRRR..what a little tiger!Love those paw prints!!
Linda xxx
Wow they are fab! ~ and so trendy too :o)
hugs Vicky xx
very cool splints Louis!! Fi x
How cool are they !
very cool splints louis,love the animal print.
sue xx
Wow those are well cool !!!
Kerry x
wow louis how cool are they ... and and I bet they keep your feet nice and warm in bed ... love sandy xx
These are just sooo cool Louis!:) x
Isn't it great that the kids can be trendy which makes them feel good :o)
Jackie xx
Awww bless,Louis you are unique and very special,these are really cool.xxx
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